After a 2 hour wait in the surgeon's office we found out that Lily has a 3rd degree cleft palate (which is the worst) which extends through her gumline. The next course of action is to see the orthodontist and see how he wants to repair the gumline before repairing the palate. Our surgeon has had more success when the gumline is corrected first. So, I will call the orthodontist on Monday and set up that appoitment. Lily is still young, so the palate surgery should still be on target for when he likes to do them. The gumline will have to heal for 2-3 months before he can go in and repair the palate.
Still waiting to hear on her ENT appointment,eye appointment and results of the blood work that was taken and stool samples.
We are at Daufuskie now with Dawn and the kids. We arrived last night. Fun, fun, fun.....
Ah Kelly, I HEAR you!!! I feel like this is process is a whirlwind of doctor appointments, coordinating, waiting, and sad blood draws.
ReplyDeleteOur CP surgery appointment is Monday and we will have a better idea there of what we are facing. I had not even considered the gumline issue.
We need to schedule our eye appointment too.
Blessing to you and Dawn! Glad you are out together and having fun with your family.